The Valerie Fund Blog

The Valerie Fund Board of Directors is proud to announce a new Center will join The Valerie Fund healthcare network serving children in our area with cancer and blood disorders. The St. Joseph's Children's Hospital Paterson-based outpatient facility strengthens The Valerie Fund's ability to offer top-notch services and programs for children and their families in other parts of New Jersey. The official date for the inclusion is July 1, 2016.

The Valerie Walk and JAG Physical Therapy 5K Run, now in its 11th year, is a fine example of the successful growth of a small community event with a big heart. More than $5,000,000 has been raised since a group of people met at Verona (NJ) Park in 2006 to celebrate the courage and resilience of children being treated for cancer and blood disorders. 

Just as The Valerie Fund began in the living room of founders Ed and Sue Goldstein to honor their nine-year-old daughter Valerie’s memory, the first Walk-a-thon brought an intimate number of supporters together who wanted to show their thanks and raise money for the non-profit organization. The Valerie Fund’s mission is to provide comprehensive health care services to young patients and their families at a most vulnerable time.

Valerie was treated at hospitals in New York City for Ewing’s Sarcoma (bone cancer) for six years until she passed away in 1976. Her parent’s vision was to spare other families with critically ill children the additional suffering associated with traveling long distances to receive state-of-the-art medical care.

The Valerie Fund would like to share a letter that we received from Ed and Sue Goldstein, founders of The Valerie Fund in support of our Friend to Friend Campaign: Give, Share, Repeat. We are asking all of our supporters to share your knowledge and connection to The Valerie Fund with your friends, family and business associates just as Ed and Sue Goldstein have below. Join us by making a donation of your choice in support of The Valerie Fund Walk and JAG Physical Therapy 5K Run on June 11th. Then, post a letter on your social media about your relationship to The Valerie Fund and asking your friends to do the same and share with their social media. Our goal is to recruit one million supporters for this year's walk! Thank you and we hope you will consider this campaign! 

The popular use of various colored ribbons to promote disease awareness provides the perfect synergy to The Valerie Fund’s kickoff of fundraising activities leading up to the 2016 Walk and JAG Physical Therapy 5K Run to be held in Essex County’s Verona Park on Saturday, June 11, 2016.  Red ribbons for Sickle Cell Awareness and gold ribbons for Childhood Cancer are powerful symbols of the Red & Gold Campaign.  These meaningful colors of awareness will be the theme for the 2016 Valerie Fund Walk. 

Sue and Ed Goldstein created The Valerie Fund in 1976 after losing their younger daughter Valerie to cancer. In Valerie’s memory, they were driven to make things better for other children and families fighting that same battle. In 1989 Sue and Ed’s older daughter Stacy was diagnosed with breast cancer and in 2001, at the age of 37, Stacy, too, lost her battle with cancer.

Sue was always in the forefront of getting the word out about The Valerie Fund and parenting a sick child. She co-wrote and co-produced the early Valerie Fund newsletters, and has just recently started writing for her personal blog.

What follows is an enlightening excerpt from Sue’s as-yet-unpublished memoirs titled “Unexpected Lives”. She describes the book as “...told from a mother’s perspective... the story of how one family confronts cancer in its only two children: Valerie, diagnosed when she was three, and years later, Stacy, diagnosed at twenty five." Sue uncovers her family’s will to live fully and enthusiastically. Hovering over all, however, is a dark cloud of uncertainty as ordinary people are faced with extraordinary illness.

Amy Tarabokia’s son, Nicholas, was diagnosed with leukemia in 2006 just shy of his fourth birthday, and received his last treatment in 2009 on his seventh birthday. She notes that there are many support groups for families but very few, if any, just for moms. "Moms take care of everyone else and tend to put themselves 'on the back burner'.” One of the things she remembers most vividly is the overwhelming feeling of isolation, particularly when Nicholas was quarantined and her “only outlet was the phone.” She tried to stay positive but there was a “constant dark cloud” hovering over her. The Valerie Fund Mom2Mom program gives moms a way to connect with kindred spirits who understand what it means to have a sick child because they have been there themselves. 

Unless your child is attending a tuition free college (and there are a few of those schools out there), the average cost of getting a four - year degree is now conservatively priced at $180,000 (private) and $95,000 (in state public). While these figures include virtually all of the costs associated with higher learning---tuition, housing, meals, books and school supplies, fees and transportation--- not many people can avoid the sense of sticker shock and foreboding when thoughts turn to paying for this privilege.

As education costs continue to rise, The Valerie Fund Scholarship Committee has seen a steady increase in applications from both pediatric cancer patients and those living with blood disorders. “These are outstanding kids,” says committee member Debbie Schiller, “they’re hardworking and highly motivated to get the best education they can. Their applications reflect a universal anxiety about how to make up the difference between tuition costs and what their families can afford to pay.”