---
title: The Valerie Fund Blog | sickle cell
description: sickle cell |
---

[![The Valerie Fund](https://blog.thevaleriefund.org/hs-fs/hubfs/TheValerieFund_November2017/Images/img-logo.png?width=138&height=230&name=img-logo.png "The Valerie Fund")](https://www.thevaleriefund.org/)

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### When Valerie Goldstein lost her battle to cancer at the age of 9, her parents Ed and Sue vowed to help families in similar situations gain easier access to more customized care.

[All About the Fund](https://www.thevaleriefund.org/about/) ![](https://blog.thevaleriefund.org/hubfs/TheValerieFund_November2017/Images/valerie.png)

![valerie.png](https://blog.thevaleriefund.org/hs-fs/hubfs/TheValerieFund_November2017/Images/valerie.png?width=368&name=valerie.png "valerie.png")

### The Valerie Fund supports comprehensive health care services focusing on psychosocial programs for children with cancer and blood disorders close to home.

[About What We Do](https://www.thevaleriefund.org/what-we-do/) ![](https://blog.thevaleriefund.org/hubfs/TheValerieFund_November2017/Images/Screen%20Shot%202017-09-05%20at%2011.00.58%20AM.png)

![Screen Shot 2017-09-05 at 11.00.58 AM.png](https://blog.thevaleriefund.org/hs-fs/hubfs/TheValerieFund_November2017/Images/Screen%20Shot%202017-09-05%20at%2011.00.58%20AM.png?width=371&name=Screen%20Shot%202017-09-05%20at%2011.00.58%20AM.png "Screen Shot 2017-09-05 at 11.00.58 AM.png")

### Your participation, time or financial gift ensures that children get everything they need to receive the most effective treatment.

[Ways to Help](https://www.thevaleriefund.org/youcanhelp/) ![](https://blog.thevaleriefund.org/hubfs/TheValerieFund_November2017/Images/Screen%20Shot%202017-09-05%20at%2011.02.22%20AM.png)

![Screen Shot 2017-09-05 at 11.02.22 AM.png](https://blog.thevaleriefund.org/hs-fs/hubfs/TheValerieFund_November2017/Images/Screen%20Shot%202017-09-05%20at%2011.02.22%20AM.png?width=370&name=Screen%20Shot%202017-09-05%20at%2011.02.22%20AM.png "Screen Shot 2017-09-05 at 11.02.22 AM.png")

### Our Annual Walk Event

Donate or Join a Team

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### Our unique blend of medical care and emotional counseling gives patients and their families the supportive environment they need during treatment and beyond.

[Learn More](https://www.thevaleriefund.org/for-patients-and-families/)

### Our Centers

- [Children's Hospital of Phila/Voorhees](https://www.thevaleriefund.org/childrens-hospital-philavoorhees)
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## Supporting children with cancer and blood disorders since 1976

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# The Valerie Fund Blog

<https://twitter.com/TheValerieFund_> <https://www.facebook.com/thevaleriefund?ref=ts> <https://www.youtube.com/user/TVF1976> <https://www.instagram.com/thevaleriefund/>

 

## [Getting the Most Out of Summer Even With Sickle Cell](https://blog.thevaleriefund.org/getting-the-most-out-of-summer-even-with-sickle-cell-0)

 Posted by [The Valerie Fund](https://blog.thevaleriefund.org/author/the-valerie-fund) on

06/14/21

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[![](https://blog.thevaleriefund.org/hubfs/BLOG%20FB%20Image%20SCD%20in%20Summer.png)](https://blog.thevaleriefund.org/getting-the-most-out-of-summer-even-with-sickle-cell-0)

Summer should be about fun and having a good time for kids. They get a break from their routine and schoolwork and can finally relax - enjoy being a kid! However, for those kids battling sickle cell disease, summer brings with it certain risks. We want to share some tips on how to maximize your child's summer enjoyment without risking their health, a possible pain episode, or injury. 

[read more »](https://blog.thevaleriefund.org/getting-the-most-out-of-summer-even-with-sickle-cell-0)

 0 Comments [Click here to read/write comments](https://blog.thevaleriefund.org/getting-the-most-out-of-summer-even-with-sickle-cell-0#comments-listing)

 Topics: [moms](https://blog.thevaleriefund.org/topic/moms), [sickle cell](https://blog.thevaleriefund.org/topic/sickle-cell), [caregivers](https://blog.thevaleriefund.org/topic/caregivers), [hematology](https://blog.thevaleriefund.org/topic/hematology), [patients](https://blog.thevaleriefund.org/topic/patients), [nutrition](https://blog.thevaleriefund.org/topic/nutrition)

## [A New Hope For Sickle Cell Patients](https://blog.thevaleriefund.org/a-new-hope-for-sickle-cell-patients)

 Posted by [The Valerie Fund](https://blog.thevaleriefund.org/author/the-valerie-fund) on

05/13/21

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[![](https://blog.thevaleriefund.org/hubfs/BLOG%20FB%20Image%20CRISPR.png)](https://blog.thevaleriefund.org/a-new-hope-for-sickle-cell-patients)

One of the worst things a parent can hear is that their child is being diagnosed with sickle cell disease. Sickle cell is a lifelong genetic disorder and puts a person's health and life at serious risk. There has been little progress in terms of treatment or a cure aside from pain management until just recently. There may now be hope for a cure to sickle cell disease and it is at the forefront of modern healthcare technology. 

[read more »](https://blog.thevaleriefund.org/a-new-hope-for-sickle-cell-patients)

 0 Comments [Click here to read/write comments](https://blog.thevaleriefund.org/a-new-hope-for-sickle-cell-patients#comments-listing)

 Topics: [sickle cell](https://blog.thevaleriefund.org/topic/sickle-cell), [science](https://blog.thevaleriefund.org/topic/science)

## [A Spotlight on Sickle Cell Disease Patients](https://blog.thevaleriefund.org/a-spotlight-on-sickle-cell-disease-patients)

 Posted by [The Valerie Fund](https://blog.thevaleriefund.org/author/the-valerie-fund) on

09/16/20

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[![](https://blog.thevaleriefund.org/hubfs/BLOG%20FB%20Image%20NSCAM%20logo.png)](https://blog.thevaleriefund.org/a-spotlight-on-sickle-cell-disease-patients)

September is National Sickle Cell Disease Awareness Month and we would like to share the stories of four truly astonishing children and young adults. They are all Valerie Fund kids and have been treated at a Valerie Fund Children's Center near them. Please read their stories and learn why The Valerie Fund is proud of its role supporting children fighting complex medical problems.

[read more »](https://blog.thevaleriefund.org/a-spotlight-on-sickle-cell-disease-patients)

 0 Comments [Click here to read/write comments](https://blog.thevaleriefund.org/a-spotlight-on-sickle-cell-disease-patients#comments-listing)

 Topics: [Blood Disorders](https://blog.thevaleriefund.org/topic/blood-disorders), [sickle cell](https://blog.thevaleriefund.org/topic/sickle-cell), [national sickle cell awareness month](https://blog.thevaleriefund.org/topic/national-sickle-cell-awareness-month)

## ["Healing Vibes" by Joyce: A Valerie Fund Playlist](https://blog.thevaleriefund.org/healing-vibes-by-joyce-a-valerie-fund-playlist)

 Posted by [The Valerie Fund](https://blog.thevaleriefund.org/author/the-valerie-fund) on

09/17/19

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[![](https://blog.thevaleriefund.org/hubfs/Music%20Mondays%20Banner.jpg)](https://blog.thevaleriefund.org/healing-vibes-by-joyce-a-valerie-fund-playlist)

Many people use music to get through a bad time or to give them the power to fight back. Some people use music to put them in a good mood or to translate what they're feeling. Each month we bring you a playlist from one of our Valerie Fund kids with a different theme and they will explain, in their own words, what these songs mean to them.

Put on your headphones and join us for the this month's **Valerie Fund Music Mondays** as we look at Joyce's playlist, "**Healing Vibes**."

[read more »](https://blog.thevaleriefund.org/healing-vibes-by-joyce-a-valerie-fund-playlist)

 0 Comments [Click here to read/write comments](https://blog.thevaleriefund.org/healing-vibes-by-joyce-a-valerie-fund-playlist#comments-listing)

 Topics: [sickle cell](https://blog.thevaleriefund.org/topic/sickle-cell), [patients](https://blog.thevaleriefund.org/topic/patients), [TVF Playlist](https://blog.thevaleriefund.org/topic/tvf-playlist)

## [Back to School Tips for Kids with Sickle Cell Disease](https://blog.thevaleriefund.org/back-to-school-tips-for-kids-with-sickle-cell-disease)

 Posted by [The Valerie Fund](https://blog.thevaleriefund.org/author/the-valerie-fund) on

09/03/19

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[![](https://blog.thevaleriefund.org/hubfs/Back%20to%20School.png)](https://blog.thevaleriefund.org/back-to-school-tips-for-kids-with-sickle-cell-disease)

The month of September means two things: it is National Sickle Cell Awareness Month and it's time for back to school!

[read more »](https://blog.thevaleriefund.org/back-to-school-tips-for-kids-with-sickle-cell-disease)

 0 Comments [Click here to read/write comments](https://blog.thevaleriefund.org/back-to-school-tips-for-kids-with-sickle-cell-disease#comments-listing)

 Topics: [Blood Disorders](https://blog.thevaleriefund.org/topic/blood-disorders), [moms](https://blog.thevaleriefund.org/topic/moms), [sickle cell](https://blog.thevaleriefund.org/topic/sickle-cell), [awareness](https://blog.thevaleriefund.org/topic/awareness), [hematology](https://blog.thevaleriefund.org/topic/hematology), [patients](https://blog.thevaleriefund.org/topic/patients)

## [Getting the Most Out of Summer Even With Sickle Cell](https://blog.thevaleriefund.org/getting-the-most-out-of-summer-even-with-sickle-cell)

 Posted by [The Valerie Fund](https://blog.thevaleriefund.org/author/the-valerie-fund) on

07/15/19

- [Tweet](https://twitter.com/share)

[![](https://blog.thevaleriefund.org/hubfs/SCB%202%20v4.png)](https://blog.thevaleriefund.org/getting-the-most-out-of-summer-even-with-sickle-cell)

Summer should be about fun and having a good time for kids. They get a break from their routine and schoolwork and can finally relax - enjoy being a kid! However, for those kids battling sickle cell disease, summer brings with it certain risks. We want to share some tips on how to maximize your child's summer enjoyment without risking their health, a possible pain episode, or injury. 

[read more »](https://blog.thevaleriefund.org/getting-the-most-out-of-summer-even-with-sickle-cell)

 0 Comments [Click here to read/write comments](https://blog.thevaleriefund.org/getting-the-most-out-of-summer-even-with-sickle-cell#comments-listing)

 Topics: [moms](https://blog.thevaleriefund.org/topic/moms), [sickle cell](https://blog.thevaleriefund.org/topic/sickle-cell), [caregivers](https://blog.thevaleriefund.org/topic/caregivers), [hematology](https://blog.thevaleriefund.org/topic/hematology), [patients](https://blog.thevaleriefund.org/topic/patients), [nutrition](https://blog.thevaleriefund.org/topic/nutrition)

## [25 Valerie Fund Named 2018-19 Scholars Meet and Share Experiences](https://blog.thevaleriefund.org/25-valerie-fund-named-2018-19-scholars-meet-and-share-experiences)

 Posted by [The Valerie Fund](https://blog.thevaleriefund.org/author/the-valerie-fund) on

01/10/19

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[![](https://blog.thevaleriefund.org/hubfs/TVF-Scholarships-1.jpg)](https://blog.thevaleriefund.org/25-valerie-fund-named-2018-19-scholars-meet-and-share-experiences)

Valerie Fund scholarship donors, board members, staff and parents recognized 25 of the 36 named scholarship recipients at the Maplewood Country Club in Maplewood, NJ on January 3, 2019. In total, 93 former and current Valerie Fund patients were awarded scholarships for the 2018 - 2019 academic year totaling $430,000 in scholarship money to attend college and universities, from local community colleges and vocational programs, to Ivy Leagues, nursing, and medical school.

[read more »](https://blog.thevaleriefund.org/25-valerie-fund-named-2018-19-scholars-meet-and-share-experiences)

 0 Comments [Click here to read/write comments](https://blog.thevaleriefund.org/25-valerie-fund-named-2018-19-scholars-meet-and-share-experiences#comments-listing)

 Topics: [education](https://blog.thevaleriefund.org/topic/education), [childhood cancer](https://blog.thevaleriefund.org/topic/childhood-cancer), [sickle cell](https://blog.thevaleriefund.org/topic/sickle-cell), [scholarship](https://blog.thevaleriefund.org/topic/scholarship), [awareness](https://blog.thevaleriefund.org/topic/awareness), [scholarship program](https://blog.thevaleriefund.org/topic/scholarship-program), [hematology](https://blog.thevaleriefund.org/topic/hematology), [oncology](https://blog.thevaleriefund.org/topic/oncology), [survivor](https://blog.thevaleriefund.org/topic/survivor), [new jersey](https://blog.thevaleriefund.org/topic/new-jersey), [fundraising](https://blog.thevaleriefund.org/topic/fundraising), [nonprofit](https://blog.thevaleriefund.org/topic/nonprofit)

## [Meet the 2018 Ambassadors: Part 3](https://blog.thevaleriefund.org/meet-the-2018-ambassadors-part-3)

 Posted by [The Valerie Fund](https://blog.thevaleriefund.org/author/the-valerie-fund) on

11/14/18

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[![](https://blog.thevaleriefund.org/hubfs/Santino%20Web%20Resized.jpg)](https://blog.thevaleriefund.org/meet-the-2018-ambassadors-part-3)

###  Our blog series finishes with excerpts from the last set of 2018 Ambassador's profiles. A total of 16 ambassadors will represent The Valerie Fund at The Thanksgiving Ball Gala this Friday, November 16th. 

 

[read more »](https://blog.thevaleriefund.org/meet-the-2018-ambassadors-part-3)

 0 Comments [Click here to read/write comments](https://blog.thevaleriefund.org/meet-the-2018-ambassadors-part-3#comments-listing)

 Topics: [Non-profit](https://blog.thevaleriefund.org/topic/non-profit), [Pediatric Cancer](https://blog.thevaleriefund.org/topic/pediatric-cancer), [Blood Disorders](https://blog.thevaleriefund.org/topic/blood-disorders), [Charity](https://blog.thevaleriefund.org/topic/charity), [pediatric](https://blog.thevaleriefund.org/topic/pediatric), [childhood cancer](https://blog.thevaleriefund.org/topic/childhood-cancer), [sickle cell](https://blog.thevaleriefund.org/topic/sickle-cell), [awareness](https://blog.thevaleriefund.org/topic/awareness), [hematology](https://blog.thevaleriefund.org/topic/hematology), [oncology](https://blog.thevaleriefund.org/topic/oncology), [centers](https://blog.thevaleriefund.org/topic/centers), [new jersey](https://blog.thevaleriefund.org/topic/new-jersey), [fundraising](https://blog.thevaleriefund.org/topic/fundraising), [nonprofit](https://blog.thevaleriefund.org/topic/nonprofit), [ambassadors](https://blog.thevaleriefund.org/topic/ambassadors), [advocate](https://blog.thevaleriefund.org/topic/advocate), [patients](https://blog.thevaleriefund.org/topic/patients)

## [Meet the 2018 Ambassadors: Part 2](https://blog.thevaleriefund.org/meet-the-2018-ambassadors-part-2)

 Posted by [The Valerie Fund](https://blog.thevaleriefund.org/author/the-valerie-fund) on

11/02/18

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[![](https://blog.thevaleriefund.org/hubfs/Natasha_picture%20for%20blog.jpg)](https://blog.thevaleriefund.org/meet-the-2018-ambassadors-part-2)

### In preparation for the Thanksgiving Ball Gala, at [The Grove](https://www.thegrovenj.com/) in Cedar Grove, the ambassadors met there a few weeks beforehand for the "Ambassador Orientation." They spent the evening filling out questionnaires, chatting, bonding, eating pizza, and touring the beautiful facility. Many parents of the younger ambassadors also joined the orientation.

### An important part of the evening is always the medal ceremony. Each ambassador is awarded a special medal for his/her service to The Valerie Fund to be worn the night of the Gala. The ambassadors also have their picture taken to be featured in the Gala's program along with their handwritten excerpts.

[read more »](https://blog.thevaleriefund.org/meet-the-2018-ambassadors-part-2)

 0 Comments [Click here to read/write comments](https://blog.thevaleriefund.org/meet-the-2018-ambassadors-part-2#comments-listing)

 Topics: [Non-profit](https://blog.thevaleriefund.org/topic/non-profit), [Pediatric Cancer](https://blog.thevaleriefund.org/topic/pediatric-cancer), [Blood Disorders](https://blog.thevaleriefund.org/topic/blood-disorders), [Charity](https://blog.thevaleriefund.org/topic/charity), [pediatric](https://blog.thevaleriefund.org/topic/pediatric), [childhood cancer](https://blog.thevaleriefund.org/topic/childhood-cancer), [sickle cell](https://blog.thevaleriefund.org/topic/sickle-cell), [awareness](https://blog.thevaleriefund.org/topic/awareness), [hematology](https://blog.thevaleriefund.org/topic/hematology), [oncology](https://blog.thevaleriefund.org/topic/oncology), [centers](https://blog.thevaleriefund.org/topic/centers), [new jersey](https://blog.thevaleriefund.org/topic/new-jersey), [fundraising](https://blog.thevaleriefund.org/topic/fundraising), [nonprofit](https://blog.thevaleriefund.org/topic/nonprofit), [ambassadors](https://blog.thevaleriefund.org/topic/ambassadors), [advocate](https://blog.thevaleriefund.org/topic/advocate), [patients](https://blog.thevaleriefund.org/topic/patients)

## [Meet the 2018 Ambassadors: Part 1](https://blog.thevaleriefund.org/meet-the-2018-ambassadors-part-1)

 Posted by [The Valerie Fund](https://blog.thevaleriefund.org/author/the-valerie-fund) on

10/26/18

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[![](https://blog.thevaleriefund.org/hubfs/20181009_RN2_3680.jpg)](https://blog.thevaleriefund.org/meet-the-2018-ambassadors-part-1)

### Friday, November 16, 2018 is our 27th Annual Thanksgiving Ball Gala. This year, the event will be held at [The Grove](https://www.thegrovenj.com/) in Cedar Grove, NJ, a new location for the first time in over two decades.

A tradition that will continue is inviting current and former Valerie Fund patients to be the evening's ambassadors. Guests will have the opportunity to meet with the ambassadors both informally in the ballroom and at Learning Depots. Learning Depots allow Valerie Fund patients and caregivers to educate guests about all the services the organization has to offer.

This year's ambassadors range in age from six to 19. They come from diverse backgrounds and were diagnosed with different pediatric cancers or blood disorders. They have shared their stories on how The Valerie Fund has helped them and their families. Their responses will be featured in the Thanksgiving Ball Gala's program as well as in this series of blogs.

[read more »](https://blog.thevaleriefund.org/meet-the-2018-ambassadors-part-1)

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 Topics: [Non-profit](https://blog.thevaleriefund.org/topic/non-profit), [Pediatric Cancer](https://blog.thevaleriefund.org/topic/pediatric-cancer), [Blood Disorders](https://blog.thevaleriefund.org/topic/blood-disorders), [Charity](https://blog.thevaleriefund.org/topic/charity), [pediatric](https://blog.thevaleriefund.org/topic/pediatric), [childhood cancer](https://blog.thevaleriefund.org/topic/childhood-cancer), [sickle cell](https://blog.thevaleriefund.org/topic/sickle-cell), [awareness](https://blog.thevaleriefund.org/topic/awareness), [hematology](https://blog.thevaleriefund.org/topic/hematology), [oncology](https://blog.thevaleriefund.org/topic/oncology), [centers](https://blog.thevaleriefund.org/topic/centers), [new jersey](https://blog.thevaleriefund.org/topic/new-jersey), [fundraising](https://blog.thevaleriefund.org/topic/fundraising), [nonprofit](https://blog.thevaleriefund.org/topic/nonprofit), [ambassadors](https://blog.thevaleriefund.org/topic/ambassadors), [advocate](https://blog.thevaleriefund.org/topic/advocate), [patients](https://blog.thevaleriefund.org/topic/patients)

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