Summer should be about fun and having a good time for kids. They get a break from their routine and schoolwork and can finally relax - enjoy being a kid! However, for those kids battling sickle cell disease, summer brings with it certain risks. We want to share some tips on how to maximize your child's summer enjoyment without risking their health, a possible pain episode, or injury.
Topics: moms, sickle cell, caregivers, hematology, patients, nutrition
One of the worst things a parent can hear is that their child is being diagnosed with sickle cell disease. Sickle cell is a lifelong genetic disorder and puts a person's health and life at serious risk. There has been little progress in terms of treatment or a cure aside from pain management until just recently. There may now be hope for a cure to sickle cell disease and it is at the forefront of modern healthcare technology.
Topics: sickle cell, science
September is National Sickle Cell Disease Awareness Month and we would like to share the stories of four truly astonishing children and young adults. They are all Valerie Fund kids and have been treated at a Valerie Fund Children's Center near them. Please read their stories and learn why The Valerie Fund is proud of its role supporting children fighting complex medical problems.
Topics: Blood Disorders, sickle cell, national sickle cell awareness month
Many people use music to get through a bad time or to give them the power to fight back. Some people use music to put them in a good mood or to translate what they're feeling. Each month we bring you a playlist from one of our Valerie Fund kids with a different theme and they will explain, in their own words, what these songs mean to them.
Put on your headphones and join us for the this month's Valerie Fund Music Mondays as we look at Joyce's playlist, "Healing Vibes."
Topics: sickle cell, patients, TVF Playlist
The month of September means two things: it is National Sickle Cell Awareness Month and it's time for back to school!
Topics: Blood Disorders, moms, sickle cell, awareness, hematology, patients
Summer should be about fun and having a good time for kids. They get a break from their routine and schoolwork and can finally relax - enjoy being a kid! However, for those kids battling sickle cell disease, summer brings with it certain risks. We want to share some tips on how to maximize your child's summer enjoyment without risking their health, a possible pain episode, or injury.
Topics: moms, sickle cell, caregivers, hematology, patients, nutrition
Valerie Fund scholarship donors, board members, staff and parents recognized 25 of the 36 named scholarship recipients at the Maplewood Country Club in Maplewood, NJ on January 3, 2019. In total, 93 former and current Valerie Fund patients were awarded scholarships for the 2018 - 2019 academic year totaling $430,000 in scholarship money to attend college and universities, from local community colleges and vocational programs, to Ivy Leagues, nursing, and medical school.
Topics: education, childhood cancer, sickle cell, scholarship, awareness, scholarship program, hematology, oncology, survivor, new jersey, fundraising, nonprofit
Topics: Non-profit, Pediatric Cancer, Blood Disorders, Charity, pediatric, childhood cancer, sickle cell, awareness, hematology, oncology, centers, new jersey, fundraising, nonprofit, ambassadors, advocate, patients
Topics: Non-profit, Pediatric Cancer, Blood Disorders, Charity, pediatric, childhood cancer, sickle cell, awareness, hematology, oncology, centers, new jersey, fundraising, nonprofit, ambassadors, advocate, patients
A tradition that will continue is inviting current and former Valerie Fund patients to be the evening's ambassadors. Guests will have the opportunity to meet with the ambassadors both informally in the ballroom and at Learning Depots. Learning Depots allow Valerie Fund patients and caregivers to educate guests about all the services the organization has to offer.
This year's ambassadors range in age from six to 19. They come from diverse backgrounds and were diagnosed with different pediatric cancers or blood disorders. They have shared their stories on how The Valerie Fund has helped them and their families. Their responses will be featured in the Thanksgiving Ball Gala's program as well as in this series of blogs.
Topics: Non-profit, Pediatric Cancer, Blood Disorders, Charity, pediatric, childhood cancer, sickle cell, awareness, hematology, oncology, centers, new jersey, fundraising, nonprofit, ambassadors, advocate, patients
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